It first emerged just over a year ago when I started getting daily diarrhoea. I can't say it was officially diagnosed; rather the doctors said IBS was their best guess as there was no blood in my stool or any obvious abdominal swelling.
I was tested for coeliac, anaemia and thyroid issues, and was recently given a stool test - all clear. They detected slight inflammation in one other blood test, but nothing significant.
No. I haven't been given an endoscopy although I have been referred to the hospital - unfortunately not until late November. I'm not sure about H pylori - is this done via blood test?
Apologies for the delay.
I saw a private doctor yesterday who took a blood sample to test for allergies and H pylori, as I wasn't sure if I'd had that test with my NHS GP. I'm pretty sure I've been tested for thyroid issues though. As a side, he confirmed that there are no lumps/swelling and prescribed me mebeverine and cyclizine as the nausea is particularly debilitating.
It sounds like there isn't much else I can do but wait for the endoscopy, but my hospital appointment isn't for another eight weeks so it could prove a frustrating wait. A few final questions I have: Is the one week feeling fine, one week feeling terrible unusual? Is it rare to take a week to recover to a trigger? And how should I approach the possibility that it's psychological? (I keep asking myself - "Is this all in my head?")
Thanks for your time. I suppose it's just tough not having a diagnosis and thinking I might have to struggle for another 2-3 months until my hospital appointment.
Just to confirm, has my deposit gone through or do I need to do something else for this payment to be made? Thanks.
Quick update in case anyone else with my issue reads this:
Saw a doctor privately on Friday and am now waiting results for blood tests, one of which is H Pylori.
In the last couple of days I've developed a slight burning sensation on my left side, which I think occurs prior to eating.
My day-to-day remains a struggle - I can get about but I'm still struggling with my appetite, nausea, and fatigue.
Hi. The blood test came up negative for H Pylori and my doctor is now stool-testing for parasites but I'm not holding out much hope. I'm not quite sure where to go from here as all the test results are coming up negative yet I'm still struggling with my appetite; my stomach is permanently tight and rumbles throughout the day. I'm frustrated rather than stressed/depressed as it's affecting both my social and professional life.
Another quick update.
The stool tests came back clear.
I have since seen a specialist privately who was concerned about my weight loss and recommended I receive scans and endoscopies as soon as possible, but this process is lengthy on the NHS and it doesn't look like that will happen until November.
I'm still struggling with my symptoms and have been confined to my bed for the last few days. Eating remains difficult due to a loss of appetite and coping with the mental side is becoming increasingly difficult. It's been a two-month nightmare that looks set to continue.
He didn't think it was just IBS because I've lost around 10kg and so wants to give me scans and endoscopies to hopefully reach a diagnosis. He suggested Crohn's Disease as a possibility.
It just means more waiting though (I have to wait two weeks before a date is even set) and I'm also scared that nothing will show on the tests and I'll be forever stuck with this debilitating nausea.
No. This medication hasn't been mentioned yet.
I've been prescribed a range of medications from Colofac to Propanolol to Landsoprazole, but to little effect, and when I showed the specialist he said to just quit taking meds.
Is prednisone I should ask my GP about?
Thanks for the tip. If I can just somehow relieve the constant nausea then that would make a huge difference.