My father has Parkinsons Disease for the past 10 or so years, of late he also was diagnosed with dementia (relating to the Parkinsons). He has been having care provided by the Local Authority, four care calls per day, for which he was means tested and has contributed towards financially. 9am, 1pm, 5pm and 9pm for two or so years. It has been obvious to me for a good while that this was inadequate for his needs. I gave up my job and became his full time carer. This has been the way for the past two years.
Despite repeated attempts to convince social services that his need was health related and not a 'social' one I was always told, particularly by the most recent social worker, that he was better off at home.
After one particularly bad night, I think I picked him up from the floor at least three times in desparation I contacted his Parkinsons Specialist and was told by her that he should be in a nursing home. I wasn't getting any rest at all, my family life was suffering and most importantly of all my father wasnt getting the care he needed. (Nursing) He was subsequently Fastracked under the NHS Continuing Healthcare Funding Scheme and placed in a nursing home immediately due to his severe health condition.
My issue is not with the nursing home funding, it is however with the local authority, the social worker involved in the latter stages and the fact that my father had to contribute to care that to even a lay person was inadequate for his health needs.
I kept documentary evidence of all incidents involving my dad, particularly where he was endangering himself, I also kept a transcript of the last meeting the social worker had with him. She was obnoxious, opinionated and extremely rude. I have a complaint with the local authority regarding this social worker at the moment.
I feel that my father should not have to pay any outstanding sums in relation to his 'social' care, I also feel that, given my repeated requests for more care than was being provided, he should get a full refund of all amounts paid. I also believe that the council has acted outside of its legal obligations where his care is concerned by means testing him for this and not providing the correct support and information when requested by his family.
I referenced the 'Coughlan' case while looking into this.
I hope this helps in some way, please do not hesitate to contact me if you need any further information.