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911DOC
911DOC, Board Certified Dr.
Category: Medical
Satisfied Customers: 5094
Experience:  Emergency Medicine Physician
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Hello, I have been having symptoms on and off for the past

Customer Question

Hello,

I have been having symptoms on and off for the past 4 years. Loss of balance, fatigue, headaches, weakness, diziness, muscle pain, spasms, nausea and doctors dont seem to be finding anything. Blood tests had low b12, iron and white blood cell count. Ive been told by a family friend whos a practitioner that I'm showing signs of MS or fibromyalgia. Nobody seems to be doing anything or helping and the symptoms keep strengthening.
Any advice or idea?
Submitted: 3 years ago.
Category: Medical
Expert:  911DOC replied 3 years ago.

911DOC :

Have you seen a neurologist?

911DOC :

Have you had a brain MRI?

911DOC :

Nerve conduction studies?

JACUSTOMER-zqbz3qk4- :

no i havent my nurse practitioner keeps thinking its a virus.. ive had no fever no vomiting no sore throat or swollen glands

911DOC :

this sounds crazy to me

911DOC :

a virus?

JACUSTOMER-zqbz3qk4- :

i have a herniated disk for the past 4 yrs and have seen one for that but thats it

JACUSTOMER-zqbz3qk4- :

yes im serious just went today and again she said it could just be vertigo

911DOC :

what part of the spine has a herniated disc?

911DOC :

sure

911DOC :

sounds like you do have vertigo

911DOC :

but vertigo is a symptom

911DOC :

and not a diagnosis

JACUSTOMER-zqbz3qk4- :

and i went to emergency and the doctor saw me for 3 min and sent me home after i had fallen

911DOC :

the question is WHY do you have it

JACUSTOMER-zqbz3qk4- :

l5-s1

911DOC :

so this is not from your disc

911DOC :

you need to demand to be evaluated by a neurologist

JACUSTOMER-zqbz3qk4- :

thats what im trying to find out. she said just an iritation of my inner ear. my ears dont hurt

911DOC :

if your NP has mentioned MS you need an MRI and other stuff as well

911DOC :

nor would they

JACUSTOMER-zqbz3qk4- :

i live in huntsville ontario and its a small town and medical care is not good

911DOC :

vertigo is usually an inner ear problem

911DOC :

and it does not involve pain

JACUSTOMER-zqbz3qk4- :

it wasnt the NP it was a family friends mom whos a doctor

911DOC :

I gather that it is not good

911DOC :

that's all well and good

JACUSTOMER-zqbz3qk4- :

im not sure where to go from here and im just stumped as i am always feeling these symptoms and i know and feel somethings wrong.

911DOC :

but you haven't been seen by the one kind of physician most likely to make your diagnosis

911DOC :

you haven't had any studies

JACUSTOMER-zqbz3qk4- :

yes thats correct.

911DOC :

and you are probably correct

911DOC :

so you need to figure out how, in the Canadian system, to get referred to a neurologist

911DOC :

and you will need to travel

JACUSTOMER-zqbz3qk4- :

do you have any ideas of what i should suggest to do> can i demand to see one?

911DOC :

but it's time to get answers

911DOC :

not sure how your system works

911DOC :

but SINCE MS has been mentioned

911DOC :

and I think that is a reasonable guess

JACUSTOMER-zqbz3qk4- :

is there anything that my symptoms show that it could be?

911DOC :

then you need an MRI and other studies to rule it out

911DOC :

your symptoms are all over the place, but most likely neurological

911DOC :

and MS can do just about anything

JACUSTOMER-zqbz3qk4- :

so its safe that i can demand to have an mri and see a neurologist?

911DOC :

they will also need to look at your heart though I think that less likely than a neurological disease

JACUSTOMER-zqbz3qk4- :

sorry for all the questions im just worried and sick and tired of these symptoms and feelings.

911DOC :

I don't know, but I would be raising utter hell to get there

911DOC :

stand by for a reference

JACUSTOMER-zqbz3qk4- :

i do have palpitations and my systollic is usually lower than normal

JACUSTOMER-zqbz3qk4- :

okay thank you\

911DOC :

so you do need your heart looked at by a specialist

JACUSTOMER-zqbz3qk4- :

i should ask for that as well?

911DOC :

I think you should mention palpitations as a symptom you experience

JACUSTOMER-zqbz3qk4- :

i dont want to offend my NP or her think im just making a big deal however i am fairly concerned about these symptoms

911DOC :

you need your thyroid checked as well

911DOC :

don't worry about offending her

JACUSTOMER-zqbz3qk4- :

ive done all this and they still havent done anything just continuing to say its a virus.

911DOC :

this is your health we are talking about

911DOC :

not for four years

JACUSTOMER-zqbz3qk4- :

yes thyroid is fine as well as no diabetes and no anemia

911DOC :

it's not a virus for four years

911DOC :

good

911DOC :

stand by

JACUSTOMER-zqbz3qk4- :

the only thing she said to me today was that i did have some antibodies in my bloodwork from the epstein barr virus however i have had no symptoms at all from that except fatigue and she said that that was probably gone by now

911DOC :

that's a trash diagnosis.... they haven't looked for more likely causes

JACUSTOMER-zqbz3qk4- :

no i agree and i feel stuck and im afraid somethings wrong.

JACUSTOMER-zqbz3qk4- :

she did the basic neurologial evaluations and said i seem fine. its bogus.

911DOC :

that's great, but you need a thorough evaluation

911DOC :

what I would do is print the references above

JACUSTOMER-zqbz3qk4- :

so i should go back and demand to see a neurologist along with wanting an mri done? do i demand a cat scan too?

911DOC :

read through them, they are easy to read and well written

911DOC :

and see what you think

JACUSTOMER-zqbz3qk4- :

okay

911DOC :

then you can go back with specific questions and requests

911DOC :

and in that setting a request to be referred should make a lot of sense to your NP

JACUSTOMER-zqbz3qk4- :

i know i have alot of the symptoms relating to MS as well as fybromyalgia not sure what i have

911DOC :

I think you do this nicely at first

911DOC :

and then do whatever you need if you are not referred

911DOC :

I don't know how you complain about care in your system

JACUSTOMER-zqbz3qk4- :

okay that makes sense.

911DOC :

but I wouldn't hesitate if a good evaluation is not forthcoming

JACUSTOMER-zqbz3qk4- :

not much its ontario we dont pay for health care so you can imagine what that system is like

911DOC :

and, I undersand, private care is now allowed in Canada

911DOC :

and you might want to look into that as well

JACUSTOMER-zqbz3qk4- :

i did not know that

911DOC :

yes, I know what it is like, I work for the US Army right now

911DOC :

it's a completely socialized system

JACUSTOMER-zqbz3qk4- :

wow that must be hard as well

911DOC :

and it stinks UNLESS you are right at a major treatment facility

911DOC :

I am probably going back to civilian practice

911DOC :

but they are trying to push through a system much like yours

911DOC :

people have no idea what they are asking for

JACUSTOMER-zqbz3qk4- :

yes that is true. here there is nothing. takes forever and everyone thinks because you are young there is nothing wrong with you

911DOC :

welcome to the Army

JACUSTOMER-zqbz3qk4- :

no they really do not. its horrible the system we have. id rather pay and know im getting proper care then not pay and have noone care

911DOC :

exactly

911DOC :

do you have any final questions for me?

JACUSTOMER-zqbz3qk4- :

so i should do those things you said and try it from there?

911DOC :

print the references

911DOC :

take your time

JACUSTOMER-zqbz3qk4- :

are my symptoms concerning honestly? just need to know the severity

911DOC :

read them twice

JACUSTOMER-zqbz3qk4- :

okay i will

911DOC :

underline or highlight what you think is relevant

911DOC :

and then you will know what to ask for

911DOC :

and I think you need to ask to see a neurologist

911DOC :

based on what you have told me

911DOC :

and as to concerning

JACUSTOMER-zqbz3qk4- :

okay i will do that.

911DOC :

yes, they are concerning

911DOC :

but not for anything life threatening

JACUSTOMER-zqbz3qk4- :

okay thank you so kindly for your help

911DOC :

if it IS MS there are good treatments though some people have a rapidly progressive course

JACUSTOMER-zqbz3qk4- :

hope all goes well for you in future!

911DOC :

if you DO have it you do not have a rapidly progressive course

911DOC :

so that's a good thing

911DOC :

thank you for your good wishes

JACUSTOMER-zqbz3qk4- :

thats good. thank you

JACUSTOMER-zqbz3qk4- :

take care doc

911DOC :

if this has been helpful to you

911DOC :

please do leave positive feedback

911DOC :

and if you wish to chat in the future

911DOC :

simply start your question

911DOC :

with

911DOC :

for 911doc only

911DOC :

and I am on most days

JACUSTOMER-zqbz3qk4- :

yes i understand and i would want to continue chatting with you so i can continue to develop the course of my medical history\

JACUSTOMER-zqbz3qk4- :

my name is amy

911DOC :

nice to meet you Amy

911DOC :

I'm john

JACUSTOMER-zqbz3qk4- :

well talk soon ill keep you updated john

911DOC :

after we close this question I will set up an auto contact reminder for a couple of weeks down the road just to check in

911DOC :

very good

JACUSTOMER-zqbz3qk4- :

thanks so much

911DOC :

you bet

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