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Family Physician
Family Physician, Doctor
Category: Medical
Satisfied Customers: 2418
Experience:  GP with over 27 years experience including emergency medicine
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Hi, Ive got Tarlov Cysts and they are on the nerves to my

Customer Question

Hi, I've got Tarlov Cysts and they are on the nerves to my bladder which has stopped me being able to void. I've been cathertised for about 14yrs and for the past 7yrs have had a Supra Pubic Catheter but my bladder causes me seriously chronic pain as it contracts like when your in labour and the only tablet to calm it down is Diazapam but I'm also on a cocktail of other med's which include Oxycontin but I'm also Diabetic and inject 7 times a day and I on anti-depressants as I can't continue to live with this chronic pain which has rendered me bed ridden 90% of the time. I've seen top consultants at the Queen Elizabeth Hospital in Birmingham and they don't even know what to do to stop my chronic pain. Please help me as I can't carry on with this existence because I'm not living a life.
Thank you

Mrs D Garmston
Submitted: 3 years ago.
Category: Medical
Expert:  Dr. Chip replied 3 years ago.
Hi--sorry to hear about this but is diazepam the only specific medication you've had for the bladder spasms?
Customer: replied 3 years ago.
No, they've given me other medication before but nothing worked & sorry but I can't remember the names but the top consultants at The Queen Elizabeth hospital in Birmingham, uk have said they have given me and tried every treatment available and have had discussions about my conditions and they've said I've just got to live with the pain. Dr I can't keep on living this pain much longer and I've told them this but they just shrug their shoulders but I'm really at the end of my teather, would they let an animal suffer such pain?
Expert:  Dr. Chip replied 3 years ago.
I understand completely. Can you tell me more about the nature of your pain?
Customer: replied 3 years ago.

The pain in my bladder i can only compare to the pains i had when i was in labour, the bladder contracts in and out rendering me motionless as i cant move as it hurts so much, the bladder just ceases up then the pain throbs in and out very rapidly just the same as i had when i was in labour but there isnt a certain time of day or any kind of pattern when it happens, i'm in constant pain all through the day and it just varies,the only one time it does increase is when i need to move my bowels.


My Tarlov Cysts have no pattern either apart from increased pain when i move my bowels also but the bladder pain and the Cysts take it in turns as to which one hurts the most at any particular time.


I hope this helps in finding out an answer for me please, as like before i cant live like this for much longer.


 

Expert:  Dr. Chip replied 3 years ago.
I understand but please stay with me for a while. Why the suprapubic catheter?

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