The surgeon who removed tumour says Cushings is cured. MRI showed no remaining tumour.
Her daily health is varying degrees of poor. She is weak, and in bed most of the time. She uses a rolater (walker) when she moves around. Her legs feel like they cannot support her. She is having migraine type headaches almost every day. She is eating as healthily as she can. She has lost 30 lbs since the surgery, but I know the weight loss is down to the Cushings being cured.
She still has nasal blockage, and has taken Sudafed decongestant to ease that. Her head feels full of cotton wool.
She has trouble sleeping, and thinks the 'tired but wired' thing is down to her hydrocortisone medication - but if she lowers the hydrocortisone meds she has even less strength and feels she is going to pass out. no matter how much sleep she gets she is exhausted.
The last suppression test was in January, and it showed she is not producing her own cortisol at present.
Due to her dry eyes and mouth I was concerned that the desmopressin doseage may need re-evaluation - currently 3 x 100mcg tabs daily.
The hospital did say it could take up to a year before she had a recovery but its been 5 months and she is no better than a month after surgery. Is this normal? Other people have said they returned to work in that time, my daughter can do nothing.
thanks for your time