This is Dr. David
Normally, there is no acetylcholine receptor antibody (or less than 0.05 nmol/L) in the bloodstream
higher levels can mean myasthenia gravis
do you have symptoms of myasthenia gravis?
Thank you Dr. DAVID, I suffer from debilitating weakness, fatigue very weak voice,positive schirmer test (very dry eyes and very bad dry mouth) no stamina, problem eating solids, I have been ill for over 20 years, for some reason in 2003 I got a lot worse, doctors couldn't get to bottom of it, I came across an endoscopy result which Stated "This person has been warned to seek medical help in the event of Pain Dysphagia" but I was not told!!! I had to research myself so I typed Pain Dysphagia into Computer it took me to myasthenia Gravis where I recognised all the symptoms thus I requested to see a nuerologist (I had to respectfully demand) this is how I got my results. I also had a big operation for Diaphragmatic Hernie and very severe acid in 2006. I prayed this would help but it didn't the awful weakness ect continued. I also tried the pill capsule IT DIDN'T WORK!! I WENT PRIVATE FOR THIS AND THE CONSULTANT TOLD ME I HAD 'A MECHANICAL FAULT IN MY GUT' the neurologist told me it was positive but another Doctor said I don't have it I honestly think they don't want me to get answers. I also got an MRI which stated 'white lesions consistant with small vessel disease (Ive had constant Angina type pain since 2003, seen consultants and they could not find anything either) this svd diagnosis fits my symptoms but AGAIN this has never been mentioned. I am at my wits end! (Isent for test results myself) These Doctors say it is 0.5nmol/L but I know it's 0.05 may I ask your opinion, thankyou.
you can print that out and show that to your doctors and neurologist.
it says that it has to be less than 0.05 nmol/L
Mayo labs says "Values >0.02 nmol/L are consistent with a diagnosis of acquired myasthenia gravis (MG), provided that clinical/electrophysiological criteria support that diagnosis"
so that is even lower and your level is much higher than 0.02
you need to see a neurologist and request strongly that you be diagnosed with myasthenia gravis and start some therapy.
do you have other questions?
did u receive bigger question?
I saw your long reply above
did you see my reply after that?
Dr. David my husband went to my g.p. (which he doesn't do lightly) he sent a letter to say my husband had been to see him stating 'my wife is very ill' it made no difference the doctor who said I didn't have M.G. refuses to let the other nuerologist see me. I also had an EMG which she says was negative and there was no antibodies this time. If I had Acetylcholene Antibodies the first time surely I STILL HAVE THEM? This is a nightmare. Thank you, ***** ***** been very kind and helpful.
it would be unlikely if you didn't have them the first time.
I would get a copy of your prior blood work checking for these antibodies before and see.
you have current blood work which shows that you do have them now anyway.
which means this is a real possible diagnosis for you now.
Dr. DAVID, does it strengthen my diagnosis if it is 'TOXIN BOUND'?
the toxin bound antibodies is just one way to measure how many antibodies there are in the blood.
and for this lab test, this is how they measured it.
let me know if you have other questions.if done for now, please leave positive rating below the chat box so I can get credit for helping you todayyou can always reach me with "a question for Dr. David" if you have any other questionshere is my website if you need to reach me again:http://www.justanswer.com/medical/expert-dr-david/Thanks for using JustAnswers.com
o.k. thank you very much.
you are welcome