I have muscle twitching, stinging muscle pain mostly by my joints, but I believe this to be tissue pain rather that the actual joints. I have tongue sores, these are not like canker sores, they have a red border and get bigger until they eventually grow out. The sores are usually at the front of the tongue in around the same place.
I have a slight tremor. Over the past 7 months my eye has become affected. I have developed eye floaters. Then a few weeks after this i noticed the pupil in my right eye reacts to light in a spasm like fashion and is larger than the left pupil, more visible in dim light. Now the eye has began to swell, it protrudes out and the vision in it is blurring. I have had a very comprehensive range of tests and I have seen the Neurologist, Ophthalmologist and Infectious diseases specialists with no joy.
Is it possible to call you?
I have been tested for HIV, HSV EBV CMV toxoplasmosis, HTLV-1+2, CRP Plasma viscosity (1.73) plus all the sexual screening tests and swobs. I have been tested for a panel of auto antibodies too - all negative.
I did definitely get a virus off a casual partner I had, and all this started from there. I am of the belief now that all these problems are either caused by a persistent, non specific virus or some type of auto immune response. However, if I can get a non-specific viral culture on my tongue sore for example, then this could be some evidence to support the viral cause.
Not really screened for auto immune disorders but I did have a large quantity of auto immune antibody tets, ANAs? and I haven't been screened for autoimmune disorders - who is the best specialist for auto immune disorders?
I think I had a vitamin d test which was ok, but to be fair I do take a good quality multi vit for ages. I have and do get a lot of pain in my glands of the neck and occipital nodes too. The glands have been scanned and are ok, but are reactive and have been for over 18 months now.
Many thanks, I will request a referral. With the Viral culture, would the lab just identify that there is/is not a virus present or would they need to look for specific viruses? Also who could I request this test from? Thanks again