I was diagnosed with hairy cell leukaemia in July'13, had chemotherapy with cladribine, then took a bipolar episode and had mania for 2.5months. When my cells were going low with HCL, I developed oscillopsia. My vision keeps oscillating from side to side and up and down and I have been experiencing involuntary head movements which are causing me distress. I am on lithium and have been prescribed gabapentin for the vision but after 3 weeks on 600mg, my vision has worsened with reading and on looking down the ground is moving faster. I have been experiencing movement when looking down since march'13. I feel like there is movement in my head and my feet keep pulsating. I am having head movements, my head moves from side to side and back and forth when I am sitting up only. It does not happen when I am lying down. I am seeing a Neuro-opthamologist and am going to be getting a MRI scan soon. He said I have 'fast saccades', microsaccadic intrusions and mild optic atrophy. I have had bipolar for 16years.
Can you advise me on how this condition can be treated successfully, as I have now been off work for 10 months.
The oscillopsia came on when my cells were low with pancytopenia that was before I had the chemo. The head movements came on after the chemo and bipolar episode.