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Dr. David
Dr. David, Board Certified MD
Category: Medical
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Experience:  Board Certified Physician
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Background Information: I have Keratosis Pilaris Rubra Faceii

Resolved Question:

Background Information:
I have Keratosis Pilaris Rubra Faceii (and some KP spots on the backs of my arms etc)

I have been to 3 doctors who have no idea or even heard of this and its pretty depressing to hear this every-time I change doctor. They of course hate self diagnoses but I have had to do this as no one will help me. I also payed a specialist of who I may say is very well regarded in the industry on laser treatments who agreed this is KPRF and to avoid any treatment to remove redness but said he could relieve or even stop the pain I'm in. Im desperate to exhaust all other options before laser and he agreed but no doctor will help me. I'm about to quit work as I have random intense burning and heat in my face everyday. I am extremely heat intolerant, my work involves a lot of exercise and maybe this is a problem. This is very random and I can wake up with it but especially evenings I overheat so bad in my face, its stings and burns so much I am sleeping my life away. I have always had red cheeks my whole life like prince Harry and this isn't my problem I have just lived with it. For at least 15 years I have always overheated in the evenings but it didnt bother me to much but over the last 3 months this has increased to more than just heat and not just in the evenings its pretty much all day burning. Very rare do I get any relief but when I do I'm so happy for those few hours to feel my face cold and no pain. I only use coconut oil on my face now which has natural anti inflammation properties and seems to help a little, i take some supplements also that help with inflammation. Today I went to another a doctor and he had no idea, I really want to Eliminate things this could be or just have some form of medication to help me. I know these can be symptoms of kprf and I don't have roscea but i also know there could be other things that cause this just need some ideas on what I should ask my doctors to test for, I have a blood test for diabetes on Monday. I have also noticed if I just constantly drink very cold water all day none stop I can hold back the heat sensation and I can only feel some heat under my jaw line on one side.
If I Do this however my normal relief during the night suddenly becomes my time of highest intensity and I wake up in the night burning, avoid the overdose on water and this doesnt happen. I dont seem to sweat, I'm not over weight, have had shingles a few times in my back and suffer from sinus problems.

So what should I ask my 4th doctor to test me for ad possible medication?

Any help appreciated
Thank you
Submitted: 3 years ago.
Category: Medical
Expert:  Dr. David replied 3 years ago.

Dr. David :

This is Dr. David

Dr. David :

KP should not cause so much heat in your face.

Dr. David :

http://en.wikipedia.org/wiki/Keratosis_pilaris

Dr. David :

have you had your thyroid hormone levels checked?

Dr. David :

high or low thyroid hormone levels can sometimes cause these symptoms of facial flushing. you need your TSH or thyroid stimulating hormone levels checked if you haven't

Dr. David :

you should be consulting with an endocrinologist.

Dr. David :

have you had your estrogen and cortisol levels checked

Dr. David :

I mean your testosterone levels checked?

Dr. David :

low testosterone can cause facial flushing and abnormal cortisol levels can cause this as well.

Dr. David :

you should also get blood testing to check for autoimmune conditions like lupus.

Dr. David :

ANA blood test and ESR and C reactive protein which can be elevated in patients who have autoimmune conditions.

Customer: I know some people who have Kprf and have similiar symptoms but has as I have had this all my life I agree its unlikely to be causing the heat in my face which is constant and flares up worst as the day goes on with constant burning.
Customer: Thyroid is something I have asked to be checked by 2 doctors with no reply or I'm to young to have a problem :(. I will insist it is checked by my new doctor
Customer: I havent have my testosterone levels or cortisol levels checked as again my age just turns the doctors head away from it.
Customer: Auto immune conditions is again something I have looked into as I have strange hair loss pattern in my hair and beard, I just hope I find a doctor who is prepared to listen to me on this as it was pushed to one side on last attempts.
Customer: I did have a very painful nerve in my face when this all first started which cleared using a mild anti depressant drug. At first i thought maybe I had shingles in my face but my doctor felt it wasn't, since I have finally got over the nerve pain but still have some tightest in my face at intense burning from the neck up in random places and everyday its different, today all burning is under my chin and neck but yesterday all burning was in my right cheek.
Customer: Thank you for suggesting above :). Do you think I should possibly ask about neurological and maybe allergies tests? My cheeks always feel like this is an inflammation response but antihistamines do nothing for me :(. No pain killer touches this at all in slightest.
Customer: I will be meeting my new doctor next week I hope if she has a free slot.
Dr. David :

you are not too young to have thyroid problems.

Dr. David :

you are welcome

Dr. David :

I hope those suggestions help

Dr. David :

let me know if you have other questions.

Dr. David :

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Dr. David, Board Certified MD
Category: Medical
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