No pain or cramps, no problems with ileostomy. He is eating well but avoiding too much fibre and not eating fruit but plenty of meat etc. He has put on about a stone and a half (sorry not sure what this is in kg) since last July and is in the normal weight for his height. He is 18 years old. He was on iron tablets for a while up to last November but the last 3 blood tests were all normal, iron, vitamins etc and he has had no pills since then. He drinks plenty. The surgeon has asked the gastroenterologists whether reversing it will worsen the pancolitis in the large bowel and if there is any treatment they can give him before the op. We have an appointment with the gastro on 6th May so will see what they say but would like a second opinion as it will be our decision. It is difficult because he will be moving away from home in September to go to uni and this is his last chance to go because he deferred last year as he was too ill to go. His would dehisced when he came home and we had the district nurses out for 2 months after. Also the letters he has had recently say pancolitis and not Crohns. Can they be 100% sure which it is.
First one was done when he was in hospital July 2013 showed severe segmental mucosal inflammation from distal sigmoid to T1. Small single deep ulceration next to dentane line otherwise rectum spared. Proximal SC, DC, Caecum and TI were severely inflamed with pseudopolps, bleeding on contact ulcerations.
Second colonoscopy done 6th Jan 2014 with 4 biopsies which says moderate to severely active pancolitis with a few pseudopolyps.