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I am sorry to know about your son who has suffered a lot.
I would like that he should at least have an ultrasound or a CT scan of his abdomen to have a look at his kidneys if he has not had that done already.
Plus I would like that he should have his urea and creatinine monitored if he is not having that done already.
So yes I think that you should be referred to a urologist or a nephrologist to make sure everything is okay and to put your mind to rest once and for all and to know exactly what the situation with your son's kidneys is.
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Do you think I should be worried? I am rather concerned that no tests have been conducted on his kidney function since we were told of his condition involving his kidneys. My son is understandably fed up with doctors and hospitals but I think it needs looking into with everything else that has been going on since birth. I would value your opinion.
I am sure he must have had at least a blood test. The blood test is a very routine test in which they check the urea and creatinine.
I am pretty sure that it must have been normal.
Even if he has one functioning kidney his urea and creatinine should be fine.
I couldn't tell you if these tests have been carried out or when they would have been as i am in the dark. When he was admitted for his recent surgery no blood was taken. I am aware what urea and creatinine are as I am a long term insulin dependent diabetic with chronic kidney disease and i attend a renal clinic every 6 months. I was not aware that my son could be susceptible to major kidney difficulties because it has never been explained to me what precaution tests could be administered. Now that i know what to ask for i will arrange to see a GP as soon as i can get an appointment for him.
Yes that is the right thing to do.
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