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Difficulty with digesting fats would decrease the absorptions of vitamins A, D, E, and K. Vitamin K is essential in blood clotting.
Have you had any imaging studies? Any blood work?
Hi, are you there?
Can you tell me also if any of you have problems with your lungs, or breathing?
no imaging or blood studies
i am athsmatic
no problem with lungs
As it sounds like this is something hereditary I would wonder if you and your family have a very mild form of cystic fibrosis. This would connect your malabsorption and pulmonary issues.
When you say that diet and fats can't be tolerated in any form are you saying that they made your mouth bleed, or are there other symptoms as well?
none that i know of , though mother seemed to have problems with kidneys, father had constant ulcerated mouths
yes mouth bleeds, whole body goes i to spasm
My feeling would be to first test for CF. That is a very simple test where they collect some sweat and check the levels of sodium. That would give you the digestive and pulmonary problems, but the bleeding would not come as a direct result of CF but rather from malnutrition.
Does the bleeding require blood transfusions?
From reading your question, I think that before the specialist just says "food intolerance" s/he should run some tests to see if there is a specific issue that can be dealt with or treated.
The tests I would run on a patient with this presentation would include a vitamin D level, a complete blood count (to tell the amount of red blood cells, white blood cells, and platelets). I might run a test for Von Willebrand levels
Whoops -- I meant a vitamin K level (not D)
I would also test other things to see if your body is properly absorbing nutrients.
Are you still there?
bleeding does not require blood transfusions
I think that the above are the first panel of tests that would make sense to run in order to get to the bottom of this.
yes still here, trying to work out system
okay. no problem. Just wanted to make sure I hadn't lost you :)
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i think you have helped a great deal, i will take ad ice
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i think you have nelped a great deal i will take advice to xo tor
sure :) Wishing you all the best!
sorry keep losing messages, will contact yoj tomorrow. thank you.