This is Dr. David
I am a cancer doctor
it sounds like you are worried about ovarian cancer.
ovarian cancer would be very unlikely at your age.
it is much more likely for endometriosis to be causing your elevated CA 125 levels.
you can have a pelvic MRI scan but I bet that will also be negative as well.
I don't think you need any other tests at this point.
let me know if you have questions.
Yes I had the MRI and that was all fine. Is there any other cancer or disease I should be tested for and should I continue to get the blood monitored? I still do get pain on my left side
with endometriosis, this can continue to drive up CA-125 levels.
you know you have endometriosis already.
I think keeping to do CA-125 levels are expensive and will only just keep making you worried about ovarian cancer.
CA-125 has never been shown to be a good screening test to detect for early ovarian cancer.
I did have it and it was removed, I know it can come back but there was no evidence of that on the scan
it has been tested before and it is not sensitive enough and not specific enough.
I also had C199 done
endometriosis can be too small to see on CT scan.
you mean CA 19-9
that is used more to check for pancreatic cancer.
sorry yes that was done too and elevated
i was jus trying to find the results
Sorry, I've found them, they are as follows:
19-9 = 6, CA124 = 40, HE4 = 35
that CA 19-9 is low.
HE4 is elevated in endometriosis as well
HE4 should not be used as a screening test to look for early ovarian cancer.
what do you think about the CA125 (sorry not ca124)
are you paying privately for these blood tests?
yes i did
you don't need to do that.
the CA 125 are elevated from endometriosis in your body.
it is not early ovarian cancer causing it.
my insurer won't pay, they say
yes, I know.
do you have any other questions?
one more question please Dr
The insurer says that the CA125 test was carried out as an investigation as part of my symptoms which was pre the insurance policy. they say this confirms that the test was carried our to investigate symptoms that existed prior to my policy
i was going to speak to a solicitor as i don't see why they don't pay for the tests as the CA125
you can speak to a solicitor in the uk.