Hi, Thanks for your question. I'm Dr. Hasan and I'll try to help you.
Do you have any diagnosed medical problem?
Have they checked for blood levels of vitamin B 12 and other vitamins and minerals?
yes my gp tested all my bloods and they all came back normal
But are you sure about vitamin B 12?
i am pretty sure yes
Have they checked for thyroid hormone levels?
Do you get this feeling at night only?
no thats why i thought the diagnosis was strange
Yes you are right.
the achy legs can come and but the tingling is there alot
sorry come and go
Rest less leg syndrome (RLS) causes this tingling in legs and that too at night
Activity relieves the feeling so I don't agree with your doctor's diagnosis.
In my opinion you should take a second opinion.
Moreover the tingling in cheeks and areas other than legs is not explained by his diagnosis.
i paid to see a neurolgist privately aswell
Oh I see.
But you should see him again and should ask for your concerns.
what do you think this could be
Have you had MRI brain and spine?
i had an mri on my lower back it showed a bulging disc but it wasnt pressing on any nerves
There can be many causes like vitamin B 12 deficiency, diabetes, multiple sclerosis etc
the neurologist said i didnt need a brain scan
But you have been checked for most of them.
Such feeling can be caused by anxiety as well
It can be peripheral neuropathy.
she mentioned ms but said she was convinced it wasn't that or motor neurons disease
i'm not anxious about it really
Yes I am more than sure that it is not MS because that is not how symptoms present in MS.
i still questioned her when she said it was restless leg and she just kept saying the same things
You don't have that typical jerky feeling so forget MS.
Well I really don't agree with RLS.
ok what about the little twitches i keep getting
Do you get any weakness in your limbs?
i can get them anywhere from my eye,neck stomach legs etc
my legs have felt weak once or twice but they've never given out on me
In that case motor neuron disease or muscular problem is least likely but still workup for that should be done.
Peripheral neuropathy is also possible in your case.
i thought that too. She tested my reflexes made me do a lot of pulling and pushing, poked a pin in all of my limbs and that was it.
what is that
He just poked a pin or did any recording as well?
I am asking about nerve conduction studies.
just poked a pin in and asked if i could feel it
Well he should go for nerve conduction studies.
i was only in there for 30 minutes and most of that was spent asking me questions
is that an EMG
Yes but instead of questions, you need further tests.
No it's separate
so should i go back to my GP and say i want to get referred somewhere else for a 2nd opinion
You should ask your GP for a referral.
what is that periferal neuropathy
You also understand that RLS is not consistent with your symptoms.
they refered me on the NHS but it was going to take 14 weeks and i was quite worried that i had motor neurons disease that's why i paid to go private
Peripheral neuropathy is a condition which affects certain nerves in body mostly at the limbs and can cause symptoms that you have
and how does that get diagnosed?
Well motor neuron disease is not possible with your symptoms so don't stress yourself for that.
Just relax and wait for your appointment.
I reassure you for that.
ok.Will the GP refer me for a 2nd opinion or can they decline .... sorry to keep asking you stuff
It's neither MS nor motor neuron disease.
No it's ok, I am here to help you.
Are you bound to inform him about that private visit?
i don't know. The neurologist said they would send a letter to my gp explaining her decision
Well you should discuss this with your GP and ask him that you need second opinion.
I think he will refer you.
ok. Also because it was private do you know if i can appeal against part of the payment due to what she has told me?
Only his office or your GP can guide you about that legal aspect.
ok thanks. Is there treatement available for that periferal neuropathy?
Yes there are treatments for that.
I am not diagnosing you with peripheral neuropathy.
I am just suggesting that it is possible.
i know i was just inquiring
well thanks for your help
So just relax and don't worry about anything serious.
You are most welcome.
I wish you good luck and that you get well soon. My goal is to provide you with excellent service – if you feel you have received anything less, please reply back as I am happy to address follow-up questions. Kindly rate me when you are done. You can come back here to ask anything even after you have rated the answer. I will be glad to help you always.
You are welcome dear.