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DrRussMD
DrRussMD, Board Certified MD
Category: Medical
Satisfied Customers: 64325
Experience:  Board certified Internal medicine and Integrative medicine. Many years of experience all areas.
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I have recently been diagnosed with Hereditary Haemochromatosis

Resolved Question:

I have recently been diagnosed with Hereditary Haemochromatosis (HH). Treated with phlebotomy.
My consultant has been very surprised that as the iron levels have dropped I have had a dramatic improvement in the cerebellar ataxia which has been getting worse for over 4 years. From having difficulty in walking without holding on to walls, people etc. I can now walk unaided, put on trousers standing freely, etc.
The consultant said that she knew of no-one interested in iron deposits and CNS in the UK, who might be able to discuss the changes. Do you know of anyone please?
Submitted: 2 years ago.
Category: Medical
Expert:  Shantal-Mod replied 2 years ago.
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Expert:  DrRussMD replied 2 years ago.
Hello
IN fact any neurologist will be quite interested in this.
Call here and talk with the department director
https://www.ucl.ac.uk/ion
They will know someone with even a research interest in this.
OK, so that is an initial answer….
Please use reply to expert if you have further questions. When you are ready, please click a positive rating [hopefully excellent]. If you forgot something, come back. I am here daily.
Customer: replied 2 years ago.
Thank you for your interest. You suggest calling the Director. This is presumably hoping the director will know someone who has an interest in iron overload?
When I went to the site you gave me I did't see an appropriate 'call the director' box, or contact.
Expert:  DrRussMD replied 2 years ago.
No, call the institute itself, main number.
Ask to talk to the director of neurology.
In fact, as I said above ANY neurologist is going to have an interest in this.
However, talking to the institute might find you someone focusing on it.
please click a positive rating [hopefully excellent]. If you forgot something, come back. I am here daily.
DrRussMD, Board Certified MD
Category: Medical
Satisfied Customers: 64325
Experience: Board certified Internal medicine and Integrative medicine. Many years of experience all areas.
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