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Dr. David
Dr. David, Board Certified MD
Category: Medical
Satisfied Customers: 42779
Experience:  Board Certified Physician
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Good evening! This is a query about safety in epilepsy. My

Customer Question

Good evening!
This is a query about safety in epilepsy.
My daughter has autism, Down syndrome and uncontrolled epilepsy of various types which manifest every day and currently night.
The residential home in which my 29-year-old daughter resides has changed night-shift arrangements so that she is left alone in her bungalow once asleep with a monitor on her bedroom door in case of complex partial wandering seizures, but with only an auditory monitor in her room.
Her seizures can be single or multiple, but are silent, so would not alert a member of staff in the central staff base, which is where staff now sit during the night, instead of in her bungalow.
Is this against the law at all?
It seems neglectful, as the home may not be aware of any distress.
I would be so grateful for any concrete knowledge about this.
Many thanks,
AJ
Submitted: 10 months ago.
Category: Medical
Expert:  Dr. David replied 10 months ago.
This is Dr. David
it sounds like you are very worried about your daughter.
the situation is not against the law
and every residential and nursing home has their rules regarding safety and monitoring of their residents there.
surprisingly, there are limited laws and regulations from nursing home to nursing home regarding these situations.
the last laws were written in 1991
http://www.hhs.gov/about/news/2015/07/13/hhs-proposes-to-improve-care-and-safety-for-nursing-homes-residents.html
are proposals from the US dept of house and human services which tries to help modernize oversite and safety and regulations at nursing homes
congress has to take it up and pass it into law which I don't think has happened yet.
you should write your local congressman and representative about these laws.
you might have to talk to a social worker and see if she might be eligible to be placed at another facility which might watch her more closely.
let me know if you have other questions.
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