Hello and thank you for your question.
Did your son under go an EEG?
it was normal
i did it twice
How long was the EEG? If it was less than 24 hours that is commonly not sufficient.
especially in infants
it was for one and a half hour only
so you mean i must do the video eeg?
When a routine EEG is normal and a child is displaying activity that is suspicious for seizures, the prolonged EEG with video is the right thing to do.
This EEG may last several days and would require inpatient admission
It would be helpful if you are able sleep deprive the infant by playing with him over night and preventing the baby from falling asleep. Sleep deprivation can trigger seizure activity and therefore would make it easier to catch on EEG.
when we left the ICU his neuro put him on keppra
but im not sure if they are doing the right thing
Keppra is an anti-seizure medication and will help prevent seizure activity. If you are still noticing the twitching despite giving him Keppra, then you need to speak his doctor. I think it is important however to determine the type and location of the seizures. As such a prolonged EEG is a good idea.
the twitching stopped when he was one year, but after that he had like a fibrel convulsion
twice witch let him go int icu
both are without fever
fever showed up the next day
Febrile seizure is not necessarily an epileptiform seizure. However a febrile seizure does increase the likelihood of epileptic seizures later in life.
It's good that the Keppra is working, however if you want to clarify what is going on a prolonged EEG is indicated since a routine EEG was normal.
the problem is he goes crazy with these wires in his head
plus he is already trified from doctors
he can even see them
You may need to give him some time and then try it after a few months. As long as the Keppra is helping it should be ok if you delay for now.
but i releazid when giving him keppra every time one hour before his second does he gets very weak and cant even put his head up
also whenever someone passes from behind of him he screams and gets scared
he no comfortable at all
hes very ancious
Most seizure meds will cause sleepiness and so this is expected. I think the fact that he gets startled easily can be disturbing as a parent, however it is not something that you need to worry about. You will have to do some trust building with him and try to make him as comfortable as possible. SInce he has been around physicians he may be feeling more anxiety when he is around strangers. Over some time you should see this improve.
i see what you mean
so you recomment prolonged eeg in the future
Yes. When in a few months I would try again to determine if he is truly having seizures. This will make it easier to take him off medications if he is not having seizures.
how much time does the keppra need to get stable in his body?
and side effects go away
Keppra is a medicine that starts working almost immediately after the loading dose. Fortunately Keppra does not have any major side effects. Among anti-seizure meds, it is one of those with the least side effects. Once Keppra is stopped, side effects should subside within 6 hours.
correction 6-12 hours
i did an mri also
they said he has a little delay in white matter? does the seizures cause this if he had it when he was 4 months?
till this date
The brain continues to develop after birth as such there are often regions in the brain that have not fully developed, this can lead to seizure activity. It may worthwhile to repeat this after one year to ensure that everything has normalized.
where is the best place to take him in europe regarding his case?
UK is a good place. UCL Institute for Neurology.
thank you very much doctor for the info
You're welcome. I hope that your son feels better.
hope so too
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will do thanks !