How did her sacroiliac joints look on CT?
It looked normal.
The Orthopedic physician did mention she had hyper-mobility, not sure if this is relevant. He couldnt find anything amiss with her scans
I should mention, the pain is in the left hand side around her hip and sometimes travels down towards her ankle.
Also, the orthopedic specialist suggested she tried a steroid injection into the joint, he didnt hold out much hope of this working and it didnt help
She is getting very down about it all now as it is getting worse, not better and is extremely frustrated and anxious, she feels she can not go on and no one is able to help her. I am happy to get private help for her, but we just dont know where to turn now. any suggestions, please.
That description would suggest a possible nerve problem, possibly a radiculitis involving a nerve root in the back near the spine, or a neuritis somewhere along the path of the nerve.
I would suggest you get nerve conduction studies (NCV and EMG) and make an appointment with a neurologist.
Thank you, ***** ***** make an appointment with a neurologist, what treatment could be avilable if radiculitus is confirmed
If there is a pinched nerve in the back, an epidural injection or surgical decompression might be needed. If it is a neuritis, you might need the NCV test to find where the problem is coming from (along the path of the nerve) and how severe the damage is. This will guide treatment.
In the meantime, ask her doctors about a medication called gabapentin. This is commonly used for chronic, nerve related pain and can be quite effective at calming the affected nerves.