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are you seeing a urologist?
have you had an ultrasound of the kidneys?
I see that you are not online any more so I will help you to the best that I can.
I am not sure what tests you have had done
It sounds like you have interstitial cysitis
this is cystitis without infection. Interstitial cystitis can be associated with other chronic pain syndromes, likeirritable bowel syndrome and fibromyalgia.
you need to see a urologist for diagnosis and treatment
but it requires a whole bunch of specialised testing including cystoscopy, biopsy, potassium test, etc
You can read about it here:
Medication, in particular Pentosan (Elmiron) is prescribed or there are other modalities like nerve stimulation, medications put in the bladder, etc
I hope that this helped
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