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DrRussMD, Board Certified MD
Category: Medical
Satisfied Customers: 65671
Experience:  Board certified Internal medicine and Integrative medicine. Many years of experience all areas.
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My name is***** suffer with EDS hyper mobile type. I have

Customer Question

My name is***** suffer with EDS hyper mobile type. I have POTS, osteoarthritis,Barrett's Eosophagus, hiatus hernia, AVM in small bowel and another 2 I had lasered of my face before I knew what they were, I have chronic anaemia, a vaginal and posterior prolapse I also suffer chronic gastro issues. I have severe lower back and neck pain and suffer from cluster headaches so barley that my GP sent me to a neurologist who diagnosed the cluster headaches and suggested an MRI. It came back clear apart from a couple of artefacts that he felt were nothing to worry about. The thing is its recommended that EDS paitients see a neurologist that has experience in EDS but unfortunately there's no one like that in Scotland. I had a standard lie down MRI but have been informed that I'd need an upright MRI to show signs of cervical cranial instability or Chiari malformation, but again that isn't available in Scotland. Right now I'm being treated for cluster headaches, but don't feel it's cluster headaches I'm having. The pain in my neck the base of my head and behind my eyes can be unbearable, but when I read the symptoms of cluster headaches that just doesn't seem to be me. Do you have any suggestions as to what I should do. The neurologist turned out to be a locum that was brought in to reduce lists and I've never saw him again. I had to chase the results up after 11weeks of hearing nothing and my MRI had to then be sent to him for me to eventually get the results. Would I need an upright MRI and would an MRI of my head Include my neck/top of my spine to check for problems there which can cause headaches and is again common in EDS patients. I've gave you as much info as I can. Hope it's not too much.
Regards ***** ***** (46yrs)
Submitted: 2 years ago.
Category: Medical
Expert:  Dr. Phil, MD replied 2 years ago.
Hello CorrieI'm Dr. Phil and I'm ready to helpThanks for this question.I don't think the MRI is going to be helpful because we are going to treat the headaches the same way regardlessI think you need to look at botox injections for chronic headacheThis is the most effective treatment I have come acrossand in fact, I have a patient with EDS that does botox injections for chronic headache and it works amazingly.
Expert:  DrRussMD replied 2 years ago.
HelloTo answer your questions, a brain MRI would not have included a cervical spine MRI.Cervical spine problems are often missed in this situation. I believe you do need the additional MRI. I am a double board certified clinical doctor.Please follow your doctors recommendations.Please click a positive rating here.Find me in medical anytime by request, for Dr. thomas only.