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These two conditions do not have very effective treatments even with the best that modern medicine can offer. :-(
If you want to make sure that no stone has been left unturned you could ask your GP to refer you to a large University Teaching hospital for a complete consult. At an institution like that you could be evaluated and treated by a team of sub-specialists who are at the cutting edge of their respective fields. The best thing about these large teaching hospitals is that consultations are available with Professors and leaders in their field by just walking a few steps down the hall.
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Dr. Rick MD FACS