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If a neuro-ophthalmologist and neurologist can not been able to pin down the underlying problem you might want to go to a Large Teaching Hospital for a second opinion.
Please allow me to explian:
It sounds like you have spent quite some time trying to get to the bottom of what is going on. I am sure that your previous doctors have thought of, and ruled out, all of the common and easily treatable conditions that could be causing your issues. Would you say this is a correct statement?Well I think it might be time for you to take a very difficult, and bold, step to see if you can get some relief.At this point I think the best thing for you to do would be to gather up copies of all your medical records and travel to a large University Teaching hospital. At an institution like that you could be evaluated and treated by a team of sub-specialists who are at the cutting edge of their respective fields. The best thing about these large teaching hospitals is that consultations are available with Professors and leaders in their field by just walking a few steps down the hall.
There are many excellent teaching hospitals all across the United Kingdom and I am sure that there is one near you.I know that it is going to take significant effort on your part, but I believe that going to one of the "Medical Mecca's" is your best chance to – finally -- get to the bottom of what is going on.Does this make sense to you?Dr. Rick MD FACS
No. You would not need to live at the University....and they do not experiment on people but students may learn from your care by the Professors.
The Doctors at the University are at the cutting edge of their fields and, in many cases, come up with the answers that community doctors just can't find.
I hope things get better soon.
It would be best to call the University Hospital, or go to their web site to see how you arrange to be evaluated. Walk would really be for critical issues.....
I do not know the London area very well but Google should be able to point you in the right direction. Just google "teaching hospitals"
Also, it would be helpful to obtain copies of your medical records for the Professor to review.
My pleasure.Best of luck to you.