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Dr.Sumanth
Dr.Sumanth, Doctor (MD)
Category: Medical
Satisfied Customers: 20057
Experience:  Consultant Pediatrician at Kanchi Kamakoti CHILDS Trust Hospital
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Have I got MS or ALS?

Customer Question

Have I got MS or ALS?
Submitted: 7 days ago.
Category: Medical
Expert:  Dr.Sumanth replied 7 days ago.
Hi,Welcome to JustAnswer. I'm Dr. Sumanth. I've 17years of experience in the field of Medicine. I'm currently reviewing your query, be back ASAP.
Customer: replied 7 days ago.
Okay
Expert:  Dr.Sumanth replied 7 days ago.

Hello... I understand your concern. I need some more information please.

  1. May I know your age and gender please?
  2. Any electrical or shock like sensation passing down the limbs?
  3. Are you experiencing any weakness of the arms or legs?
  4. Are you having any awkward limb movements?
  5. Is there any trouble in speaking or swallowing?
  6. Since how long have you had this muscle twitching?
  7. Are you frequently tripping and falling?
  8. Are you experiencing any sudden mood changes?
  9. Any loss of bladder and bowel control?
  10. Is there any family history of neurodegenerative disease or ALS or MS?
  11. When was your last calcium and Vitamin D levels checked?
  12. Are you currently on any regular medications or supplements?
Please get back to me with the above information so that I can guide you better.
Kind regards ***** ***** Sumanth Amperayani

Customer: replied 7 days ago.
I'm 28, female, British.Basically, it started with a UTI infection with lead to me having to take Macrobid (Nitro/Floxxy) at the end of May. It didn't clear the infection and at around that time. I can recall my lower back pain worsening and my left hand went numb one day when I was at home chilling.I just remember my hand going numb, I didn't think much of it. Then about two weeks later, the second week of June. I had felt my left hand/arm go numb here and there, again, ignored it. Back pain still very present. I took Cefalexin to clear the UTI which worked and in the same week I remember being in bed. And all of a sudden, I recall my toes/fingers/feet burning all at one. My thighs were throbbing/twitching. My arms hurt too. I just recall full on burning and numbness. That is all I remember and it went on for about four/five days this did. I was in agony and crying so much.After two weeks, things settled. We are in mid June now and all that I am left with are my fingers which feel weird when I curl them, their joints feel firmer? But my hands don't feel weak. My left hand/arm feels more numbish than my right, slightly. I can feel burn/cold/heat ect.I get random twitches all over my body, lips tingle a little, I have had a tiny tingle in my tongue here and there but that isn't often.My calves can hurt a little if I am walking tons, feet tend to just buzz/pins and needles nowadays. Sometimes they can burn or sometimes I get a shooting pain in a finger.I wake up numb sometimes in my legs and sometimes a hand or the other.Come 13th July, I get a call off my doctor saying I have Pelvis Inflammatory Disease. I shit myself, I am on antibiotics for two weeks. The antibiotics did not agree with me at all. doxycycline and metronidazole made me dizzy, sore neck, stiff shoulders, I was pooping tons, could not eat.I noticed within my last week of taking them, the neuropathy I already had felt worse? Legs hurt more, I was waking up with fully numb hands and legs every morning.The antibiotics are finished now. I only now feel alive again, I do not feel fatigue but I still have back pain, I noticed my legs hurt to walk more now. I am ridiculously dehydrated. The pins and needles sensation still remain in my legs, burning toes/numb feet still happen. My stomach has settled down more now thank god. But my left arm still feels abit more numb than my right.Today I was out and I felt slightly dizzy still though. Could this be MS?Is this the start of ALS?I am just so afraid, it's absolutely horrible feeling like this!
Customer: replied 7 days ago.
This has been ongoing for two months
Expert:  Dr.Sumanth replied 7 days ago.

Please hold on

Expert:  Dr.Sumanth replied 7 days ago.

Thank you for getting back with the requested necessary information.
From your symptom analysis and correlating it with the history that I have gathered from you I feel that the possibilities are -
1.Idiopathic Peripheral neuropathy. Need not worry anything serious neurological going on please.I suggest you take neurovitamins (B1, B6, B12) available as tablet Neurobion Forte - taken one tablet once a day for 3 months please. You can buy it online here -
https://www.amazon.com/Neurobion-CLASSICO-Tablets-Vitamin-Booster/dp/B003KI53T2
2.Benign Fasciculation Syndrome. Benign fasciculations are common. Despite the favorable prognosis of benign fasciculation syndrome (BFS), patients are often anxious about their symptoms. In a recent study published in 2018 - it was quoted that - BFS is a benign disorder that usually persists over time. Commonly associated symptoms include subjective weakness, sensory symptoms, and cramps. BFS is usually not associated with pathologic anxiety.I suggest you take OTC vitamin D and calcium supplements on a regular basis.
I will send a link -
https://www.amazon.co.uk/Magnesium-Supplement-Vegetarian-Nu-Nutrition/dp/B01N295CCY
This ships to UK and you can use 2 per day.
3.Drug or antibiotic induced idiosyncratic reaction.

4. Radiculopathy or pinched nerve along the course.
5.After ruling out physical causes like this, I would put stress and anxiety as last possibility please.May I suggest you discuss these possibilities with your primary care physician and get yourself appropriately evaluated and managed please.

I sincerely ***** ***** I have helped you today!
Is there anything else where I can be of assistance to you in this regard please. We can continue here until you are satisfied, simply use the reply box and let me know.
Kind regards ***** ***** Sumanth Amperayani

Customer: replied 7 days ago.
Are you sure this is not ALS? I cry most nights with worry
Expert:  Dr.Sumanth replied 7 days ago.

Yes madam I am sure.

Customer: replied 7 days ago.
I was not worried before these symptoms occurredThey started randomly with a numb hand and burning in toes and it just took over my body
Customer: replied 7 days ago.
Doesn’t als start with a numb hand?
Expert:  Dr.Sumanth replied 7 days ago.

I agree but this is not suggestive of ALS.

Customer: replied 7 days ago.
my leg and arm muscles hurt also but I do not fall but I have felt a bit dizzy
Customer: replied 7 days ago.
I can hold and I do have strength
Customer: replied 7 days ago.
I just feel sore
Expert:  Dr.Sumanth replied 7 days ago.

Soreness does not mean ALS.

Weakness is predominant.

Customer: replied 7 days ago.
does sore and weak muscles not mean ALS?I thought weak and sore and spasms meant ALS?
Expert:  Dr.Sumanth replied 7 days ago.

No it might be just fatigue and BFS or even stress.

Customer: replied 7 days ago.
I see :(
Customer: replied 7 days ago.
How long does ALS form?
Expert:  Dr.Sumanth replied 7 days ago.

You should be happy it is not ALS.

Expert:  Dr.Sumanth replied 7 days ago.

I did not understand your question.

Customer: replied 7 days ago.
How long does ALS take to form? I have been feeling this way for two months now.
Expert:  Dr.Sumanth replied 7 days ago.

Then by this time you should be having perceptible weakness.

Customer: replied 7 days ago.
In two months? Is that how fast it would form?
Expert:  Dr.Sumanth replied 7 days ago.

8 weeks is fair enough time to show weakness.

Customer: replied 7 days ago.
What type of weakness is als?Because I feel burning in my toes usually more, my fingers feel crampy sometimes but when I’ve used them the cramps go away, my tongue tingles from time to time,
Expert:  Dr.Sumanth replied 7 days ago.

Weakness is like the daily chores that you were able to do effortlessly would require help or extra effort.

Customer: replied 7 days ago.
I see I see :(
Customer: replied 7 days ago.
Well, I can do everything but I am just very sore
Customer: replied 7 days ago.
is this fibromyalgia?
Expert:  Dr.Sumanth replied 7 days ago.

Yes it could be - but not ALS.

Customer: replied 7 days ago.
How is fibromyalgia diagnosed?
Expert:  Dr.Sumanth replied 7 days ago.

Your doctor might perform some special tests like antinuclear antibody and anti double stranded DNA, apart from the routine blood test workup.
Treatment includes non-steroidal anti-inflammatory drugs, steroids, immuno-modulatory drugs and biological agents.

Customer: replied 7 days ago.
Right I see, how is MS spotted and diagnosed?
Customer: replied 7 days ago.
But are you certain muscle spams and sore muscles aren’t the start of Als?
Expert:  Dr.Sumanth replied 7 days ago.

Yes please I am.

Customer: replied 7 days ago.
I don’t have any fatigue though
Expert:  Dr.Sumanth replied 7 days ago.

Fatigue is different, weakness is different.

Customer: replied 7 days ago.
How do?
Customer: replied 7 days ago.
How so? *
Customer: replied 7 days ago.
My legs / arms feel sore / ache and I can move them fine but I wake up numb some days not everyday and when I walk around / do something I find that it can improve my feeling?Can als do this or are you always always weak with als?
Expert:  Dr.Sumanth replied 7 days ago.

As I said daily chores would be difficult to perform. For example you cannot climb steps.

Customer: replied 7 days ago.
What about the bulbar? My tongue tingles
Expert:  Dr.Sumanth replied 7 days ago.

No. Not without choking.

Customer: replied 7 days ago.
I see :(
Expert:  Dr.Sumanth replied 7 days ago.
Be happy that it is not ALS.
Customer: replied 7 days ago.
I am happy but I still feel very worried and scared in my own bodyI have Never felt this sensation before in my life
Customer: replied 7 days ago.
People say 20s age cannot have als but Stephen hawking did
Expert:  Dr.Sumanth replied 7 days ago.

Please give it sometime it will go away.

Customer: replied 7 days ago.
It has been eight weeks so I worry
Expert:  Dr.Sumanth replied 7 days ago.
It can take 3 to 6 months.
Customer: replied 7 days ago.
Oh my god
Customer: replied 7 days ago.
Is this caused by the pelvic inflammation disease?
Expert:  Dr.Sumanth replied 6 days ago.

Your symptoms are not suggestive of PID.

Customer: replied 6 days ago.
Could it be my lower back pain? I am trying to get a scan from the hospital as the area is painful.Can a disc bulge or back pain cause these symptoms?
Expert:  Dr.Sumanth replied 6 days ago.

But then the pain would be very localized and excruciating at times.

Customer: replied 6 days ago.
I feel the pain in my lower back as I walk and when I sit down up against a cushion often...When I sleep I have to sleep on my back because sleeping on my sides hurtAnd my legs are always really numb / hands when I wake upCould this all be contented ?
Customer: replied 6 days ago.
Connected
Expert:  Dr.Sumanth replied 6 days ago.

Yes in that case if position is causing aggravation of pain then it may signify radiculopathy or pinched nerve.

Customer: replied 6 days ago.
But why do I get full body spasms / tingling under skin and why do my hands feel affected? If it is my lower region of the back?
Expert:  Dr.Sumanth replied 6 days ago.

It can be neuropathy and spinal compression above, you need a MRI of the spine.

Customer: replied 6 days ago.
My hospital won’t do a scan because they don’t believe my back is an issue or the cause of the issueSo I may have to go private
Expert:  Dr.Sumanth replied 6 days ago.

Yes please in that case you may need to go private.

Customer: replied 6 days ago.
Is it possible for lower back and a numbness in the hand to start off together?Because my back began to hurt more from a twinge of pain to hurting a lot more evident and then numbness in my left hand / arm occurred and went away and then burning sensations / throbbing took over
Expert:  Dr.Sumanth replied 6 days ago.

Yes it is possible to have multiple spine compressions.

Customer: replied 6 days ago.
I see... I still worry if this is als because some days I can’t feel my legs as they do feel numb but I have control
Expert:  Dr.Sumanth replied 6 days ago.

No ALS for sure.

Customer: replied 6 days ago.
What about my muscle ache in my arms also
Expert:  Dr.Sumanth replied 6 days ago.

We have already discussed that neuropathy can cause this. I request you not to ask repetitive questions.

Customer: replied 6 days ago.
OkayI have a question regarding the spine. Can spinal stenosis or a herniated disc cause dizziness or nausea?
Expert:  Dr.Sumanth replied 6 days ago.

Cervical spine stenosis can cause dizziness. Pain anywhere can cause nausea.

Customer: replied 6 days ago.
Hmmm... I see :/I will try to see a spine doctor as soon as I can but in the U.K. there are limited appointments and they’re so so busy
Expert:  Dr.Sumanth replied 6 days ago.
I am sorry for that.

Customer: replied 6 days ago.
It’s not your fault, the NHS system is not good anymore and many people will go private
Expert:  Dr.Sumanth replied 6 days ago.

Wish you an early recovery.

Customer: replied 6 days ago.
Thank you
Expert:  Dr.Sumanth replied 6 days ago.

You are welcome.